![]() ![]() Analysis tracked chronological service engagement, followed by an inductive thematic approach. Participants were asked to recount their ‘patient journey’, from referral through to post-appointment and reflect on their perceptions of genetics and its implications for the health of themselves and their families. The sample included patients, parents and carers. 63 semi-structured interviews were conducted with Aboriginal and/or Torres Strait Islander people who had accessed the government-funded clinical genetics service in Western Australia, Queensland or the Northern Territory between 20. MethodsĪ participatory design process engaged a majority-Aboriginal Project Reference Group and Aboriginal End-User Group. This is the first study to explore barriers to accessing clinical genetics services among Aboriginal and Torres Strait Islander people, which has been acknowledged as a key strategic priority in Australian genomic health policy. As the field continues to expand in clinical utility and implementation, it is critical that Aboriginal and Torres Strait Islander people are able to participate and benefit equally to avoid further widening of the existing health gap. Clinical genetics services are at the vanguard of realising the health benefits of genomic medicine. Aboriginal and Torres Strait Islander people do not enjoy equal access to specialist health services that adequately meet their needs. ![]()
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